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A Day on the Greens to Fund Research to Find a Cure for PURA Syndrome.

Plan a weekend getaway and kick it off with us at the Westhampton Country Club—enjoy a day of golf, pickleball, great food & drinks, plus a silent and live auction featuring a curated selection of unique experiences. All in support of critical PURA Syndrome research.

Swing for a Cure

Thursday, October 1, 2026

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Meet Jack

Join Jack’s Team and help us find a cure for PURA Syndrome.

MEET JACK

Our Mission

To fund research to develop a treatment—and  ultimately a cure—for PURA Syndrome.

LEARN MORE
“Jack’s Tomorrow ... has done an amazing job developing resources such as animal models of PURA Syndrome which can empower researchers to learn more about the disease and test potential treatments which might one day make it into human clinical trials.”
— Andrew Steinsapir, Gene Therapy Expert

From: https://jackstomorrow.org/andrew-steinsapir-interview-2025

 

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View fullsize Winter break 2025 💙 📚 @easthamptonlibrary
View fullsize Merry Christmas! ❤️🎄❤️ There is so much to be thankful for this holiday season!
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View fullsize 💙 Our Scientific Advisory Board helps guide the research that advances Jack’s Tomorrow’s mission. Andrew Steinsapir, member of our Scientific Advisory Board and Gene Therapy Expert, highlights the impact of the resources we’ve dev
View fullsize 💡 Science Made Simple: PURA Syndrome Edition Ever wonder what terms in our posts like iPSC cells, mouse model, or antisense oligonucleotides (ASOs) mean? We’ve put together a glossary of key terms — from PURA protein to antisense oligon
View fullsize This Giving Tuesday, help us turn hope into reality 💙 2024 has been our most exciting year yet. What started as just a plan is now becoming science: 🔬 We have a mouse model with strong phenotype ✓ 🧬 iPSC lines are created for global research ✓
View fullsize Understanding PURA Syndrome starts with the basics, and awareness is the first step toward finding a treatment, and ultimately, a cure. 💙
View fullsize Help us find a cure! ⛳💛 Join us for Swing for a Cure on Thursday, October 1st, 2026 at Westhampton Country Club as we raise funds to help find a cure for PURA Syndrome. This year, we raised $250,000 for PURA Syndrome research and we hope to surpass
View fullsize A heartfelt thank-you to Greg Lambert and Elizabeth Lucy for hosting “Tate-a-Palooza,” a fundraiser held in honor of their son Tate who was diagnosed with PURA Syndrome in 2023, that raised $10,000 for Jack’s Tomorrow! 🧬 💛 🎉 The
View fullsize 🌟 2x votes today for Colette! Raise Awareness for Rare Disease! 🌟 Colette is a quarter-finalist for Baby of the Year, and voting to keep her in the competition ends TOMORROW at 7 pm PST. We recently spent time with Colette at our annual golf ou
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View fullsize What an amazing day! You helped make this year’s Swing for a Cure our best year yet! Your generosity has been truly extraordinary. Together, we raised more for PURA Syndrome research this year than ever before—raising $250,000, surpassin